ARRHYTHMIA ALLIANCE

Partner Information

Arrhythmia Alliance & AF Association was established following the work by its sister charity STARS (Syncope Trust) to change policy to improve arrhythmia services. A-A is a coalition of charities, patients and patient groups, caregivers, allied professionals, policy makers, medical groups and healthcare professionals; working together to promote timely and effective diagnosis and treatment of arrhythmias including atrial fibrillation. A-A & AF Association provides support, information, education, and awareness to all those affected by or involved in the care of cardiac arrhythmias. 

Both organisations are represented internationally and contributes to research, advocacy, policy and education for both healthcare professionals and patients.  

Key persons

Trudie C A Lobban MBE – Founder & CEO – Arrhythmia Alliance & AF Association

Trudie Lobban MBE, FRCP, is the founder of the Arrhythmia Alliance, the AF Association (Atrial Fibrillation Association) and STARS, all international non-profit organizations providing information, support, education and awareness on all arrhythmia (heart rhythm disorders), syncope and atrial fibrillation (AF). Trudie sits on a number of medical boards, research committees and steering groups in addition to being a council member of committees and advisory boards. She is also an author and co-author of numerous medical papers relating to cardiac arrhythmias and AF. Trudie established STARS (Syncope Trust And Reflex anoxic Seizures) charity following the diagnosis of her daughter with RAS and at the request of her paediatric neurologist in 1993. STARS has developed into an international non-profit organisation and Trudie is recognised worldwide as a patient expert on syncope and unexplained loss of consciousness. Trudie was instrumental in organising and campaigning to introduce new standards in the UK for arrhythmias and sudden cardiac death with the successful launch of an extra chapter in the National Service Framework on Coronary Heart Disease by the government and Department of Health in the UK in 2004/5. Trudie went on to establish the Arrhythmia Alliance - The Heart Rhythm Charity®: working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias. A-A is a coalition of charities, patient groups, patients, carers, medical groups, policy makers, politicians, government officials and allied professionals. Although these groups remain independent, they work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias. In 2007, due to the high demand for information and resources on atrial fibrillation, Trudie launched the AF Association. Since the launch of AF Association, Trudie has been invited to present and participate regionally, nationally and internationally at medical congresses and patient/carer meetings, including the American Heart Association, American College of Cardiology, European Society of Cardiology Syncope Taskforce, British Cardiovascular Society, British Heart Rhythm Society, Cardiac Society of Australia & New Zealand, United Arab Emirates Cardiac Society, Heart Rhythm Society (USA), Cardiac Society of South Africa, European Heart Rhythm Society, Uruguayan Cardiac Society, Latin American Cardiac Society, Canadian Cardiac Society, International Association of Patient Organisations (IAPO), World Stroke Association, World Heart Federation, the All Party Parliamentary Medical Group on Devices, the Labour Party Conference Health Forum, Patient Link Programme and European Federation Neurological Society. She is a regular speaker at the annual Heart Rhythm Congress in the UK where she is Chair and organiser. Trudie also co-Chairs the All Party Group of AF where AF Association acts as secretariat.